Sunday, October 23, 2011

My Diagnosis of T-Cell Skin Lymphoma

Yes, I have just been diagnosed with Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN).

BPDCN is a very rare and aggressive lymphoma.  There are probably between 200 - 500 diagnosed cases world wide (no specific # found).  If it is not found in the Lymph nodes or the bone marrow it will move there and become systemic over time. 
Periodic Pet/CT scans and bone marrow biopsy's would need to continue to be done in the future.

Treatment depends on whether it is only T cell skin lymphoma or is involved with other organs.

The Leukemia and Lymphoma Society only covers blood cancers.

They are an excellent organization. They give easy to follow stats on the increased survivability among leukemia and lymphoma patients over the last 30 years.

I am told regardless of treatment survival rate would be the same. So a decision must be made by us after we hear the recommendations for treatments.

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